By Susan, diagnosed at age 33 May 30, 2015 was one of the best days of my life! My boyfriend, Rich, and I got engaged on a beautiful day at a winery on Long Island. He and I quickly picked a date and a venue and planning was underway. I went wedding dress shopping and found the most beautiful strapless mermaid gown. I spent countless evenings looking up hair styles, theme ideas, bridesmaid dresses and other details I’ve been…